Living with long-term neurological conditions

Neurological and Parkinsons

Patients living with neurological disorders have complex health needs. There is no one-stop-shop to meet those needs but we do have a signposting team in place to help you to access the support you need.

Two Neurology Care Advisors (NCA’s) work within the Neuro-Rehabilitation team supporting Neurology patients with long term conditions, their carers and health and social care professionals, to access information, give advice and signposting within both, statutory, third sector and charitable organisations. The Neurology Care Advisors provide non-clinical information, advice, support and signposting to all those affected by a long term neurological condition in Cornwall. The NCA Service has a pivotal role in ensuring that individuals do not feel isolated by their condition and provides advice and guidance.

The NCA Service is a predominantly telephone based, county wide service available weekdays. There is also an email advice service for those who prefer to contact the service in this way. There are three drop in advice sessions every month in Hayle, St Austell and Liskeard. At these sessions people can have time face to face with the NCA to discuss any issues they may be having.

As part of the neurological pathway, Neurology Care Advisors work to support individuals at all phases of the pathway, promoting joined up working across transitions and services. NCA’s act as a single point of contact for people with long term neurological conditions and their carers, helping individuals to navigate their way through the range of services available within Cornwall and the Isles of Scilly. Our advisors work closely with health and social care professionals, ensuring continuity of care and support. The service aims to promote self-management by providing clear and reliable information and support.

NCA’s aim to improve quality of care by providing the time and space for individuals to talk through their concerns and queries. Successful signposting towards the NCA Service promotes efficiency enabling, health and social care professionals to focus on clinical care and service delivery. The advisors work as part of a wider team and are able to deal quickly and efficiently with any concerns individuals may have.

The service is available from 9am to 5pm Monday to Friday with an answer phone service out of hours. You can contact Mary and Bernadette on 01209 318106.

Spinal cord injury group

As part of the Neuro Rehab Team the Neurology Care Advisors run a support and information group for those affected by Spinal Cord Injury. The meetings run throughout the county every six weeks and offer information and peer support. 

Parkinson’s disease

Parkinson's now affect 127,000 people with Parkinson's, this is around 7,000 more than previously thought. By 2020 the number of people with Parkinson's in the UK will rise to 162,000. This is an increase of 28 per cent. You can find out more about the disease here.

The telephone number for the specialist nurse service is 01209 318048. Telephone message are retrieved from the answer machine on a daily basis or you can contact Lynne Osborne on 01209 318051.

Mid Cornwall Parkinson's UK

The Mid Cornwall branch offers information, friendship and support to local people with Parkinson's, their families and carers. This branch covers a large part of Cornwall stretching from the River Tamar to Redruth. They meet the needs of members by organising special events and activities each month. You can find out more about them here, as well as a list of upcoming events. 

Parkinson's nurse specialist service

Peninsula Community Health can provide a Parkinson's Nurse Specialist Service. Find out more here.

Lynne Osborne is piloting the Parkinson's Kinetigraph - a telehealth device to monitor Parkinson's movement in terms of advising about medication changes. Find out more here.